Tuesday, July 19, 2011

Reflections of a Different Kind

Have you ever passed by a shop window or a mirror and done a double take?  Recently, that's happened twice.  The first time I thought I saw my grandmother.  The second time I thought I saw my father.  Each time, upon a second look, I realized the reflection I saw was my own.  Funny, the reflection in my mind's eye is so different!  No wonder I didn't recognize myself.  Since then I've stood in front of the bathroom mirror studying my aging features, looking for the similarities I have with those long dead relatives.  And they are there, of course, for better or worse.

That got me to thinking about age, my age in particular.  That self-reflected image I carry in my mind I mentioned above?  Well, I would guess the age of that person to be early 40's.  And my self-image in terms of my energy and my intellect?  Most times I feel even younger than that, especially after a good workout.  And yet, the mirror clearly tells a different story.  It says I am, indeed, 62.

That got me to thinking about the "me" behind the physical facade.  It's like my body is a container wherein resides my person.  The container definitely looks less for the wear but the person?  She doesn't feel worn at all.  In fact, she's feeling more empowered and vital than she's felt in years.  I wasn't aware of this duality when I was younger.  The body and the person fit together pretty well back then.  They complemented each other.

So what happens to "me" when the container no longer functions?  When the container restricts the energy of "me"?  Sure, I know, there are those who have pat answers to that question but I've not been able to reconcile those answers with what I have experienced, what I've observed, and what seems logical.  Will the energy of "me" disperse into the universe, possibly joining with the energy of others who've gone before?  Will it transfer to a new container?  Or is there a bigger energy that will draw "me" to it, like a magnet or into it like a black hole?  Or does it just fizzle out, like one of those sparklers we used to light for the Fourth of July?  This last is the least satisfying thought.  I just don't see my body as fuel for "me".  I don't see the aging of this body as being the result of expended fuel.

Anyway, I feel a disconnect between "me" and my body, that's real.  Just as real as the disconnect I felt when I first glimpsed my reflections, mistaking them for past relatives.  Beyond that, it's all conjecture.

Monday, July 18, 2011

A Life Changer

Recently, I was asked a number of questions regarding events surrounding the brain aneurysm I suffered when I was 35.  Rarely does a day go by that I am not reminded of it.  After all, I have a serious scar on my head which starts at my brow and ends behind my ear.  I have worn bangs ever since in an effort to hide it.  I also have a short term memory and central processing disorder as residuals of the surgery.  Both I have managed to overcome through therapy and time.  And yet, I haven't relived the actual sequence of events for years.  Let's see, I'm 62 now so we're tallking 27 years. That sounds like a long time between the event and now, but I'm here to tell you, it is as clear to me today as it was when it happened.

It was a late January night in 1984.  Rog and I were in bed and in the midst of intimate activity.  Intercourse, in other words.  I remember all the signals were going off in my body telling me I was about to have an orgasm when my head exploded.  Well, not literally, but I saw an explosion in my head complete with the accompanying fireworks, white lightening radiating in all directions from a central point against a pitch black background.  Really.  And my head hurt.  Bad.  But the rest of my body was reaching for sexual gratification.  I remember thinking to myself in a split second, which do I hold on to?  The pain or the pleasure?  I went for the pleasure.  As good as I was feeling once orgasm was achieved however, did nothing for the major headache I was experiencing.  I remember getting out of bed and splashing my face with cold water in the hopes of putting out the fire in my head.  I moaned, for God's sake, which is not at all my standard.  The only other pain I've ever experienced that got any sound from me was child birth. 

So, it's midnight or so and I'm in major headache mode but not thinking it's anything more than that, I go back to bed to sleep it off.  That has been, and still is, my approach to dealing with illness.  Before too long, I was feeling queasy and asked Rog to get a bowl in case I threw up.  Throw up, I did.  More than once.  You might think I would have put two and two together at that point, but no, I was in major denial.  I had a headache and an upset stomach.  Period.  I WOULD feel better in the morning.  My husband, on the other hand, must have concluded things were far more serious than that though he did not suggest we go to the hospital at that time.  When the clock alarm went off, I did not feel well at all.  In fact, not only did my head hurt but light hurt.  I know that sounds strange but it did.  I could not handle seeing light.  Only a darkened room or keeping my eyes closed made the rest of my issues tolerable.  My husband suggested we go to the emergency room.  Being a teacher, there were details to attend to before I could do any such thing.   I had to call in sick and talk with the subsitute.  There were no sub plans and the regular plans for the day were with me, not at school.  I must have sounded like a total wimp as I weakly described to the sub what I had planned to do that day.  Again, in my mind I would be back the following day so there wasn't much need to fill her in on the rest of the unit activities.

So we were off.  An indicator of just how bad I felt -- I didn't fix my hair or put on make-up, something I am never seen in public without.  I remember checking into the emergency waiting room and sitting and sitting and sitting.  I felt like death warmed over and surely looked the same but it seemed to me there was no one acting as if I was an emergency.  In fact, nothing about the emergency room indicated emergencies were dealt with there.  To me, everyone moved as if time was in abundance.  When finally we were called, a young doctor asked me what was wrong and I explained what had transpired the previous evening.  He had me stand up and touch my nose with each hand.  He asked me to walk a straight line.  For crying out loud, I was sick, not drunk!  But the results of these simple tests must have told him something because the next thing I knew I was having x-rays and a spinal tap.  Blood was found in my spinal fluid and now, for the first time, I began to understand that this was something more serious than a major headache.

I remember lying on a hospital bed on wheels when the neurologist came to tell me what they suspected was wrong.  I'm looking up at this face, no body, just a face.  A strange face whose mouth is moving but I don't hear the words at first.  I hear that they think an aneurysm in my brain has sprung a leak, I'm going to be put in the ICU, I'm going to have a cat scan to determine exactly what has happened and where in my brain, how bad it is.  I'm still not fully ready to believe that I'm in serious condition, that I'm not going back to work tomorrow.  I'm just glad to know that they may know what's wrong and they plan to fix it.

I remember being in ICU, hooked up to machines.  I must have slept a lot while there as I don't remember much.  A student of mine came to visit while I was there.  She told me she told the hospital personnel she was my sister since only immediate family was allowed to visit patients in ICU.  I accepted that answer back then but now I think maybe her father had something to do with it.  As I recall he was some kind of official with the hospital.  Anyway, once I was stabilized and tests had been run and the diagnosis confirmed, I was moved to a general ward to wait.  I was told that research showed that patients with my condition fared better during surgery if a period of up to ten days was allowed for the body and the brain to normalize.  Those days went by uneventfully.  I ate, slept, bathed in bed, had to ring for bathroom assistance, did cross stitch, and listened to books on tape.  I had visitors.  Family, colleagues, friends.  I never once thought of my condition or the upcoming surgery.  I existed in a blissful state of acceptance.  No pain, no worry, just doing as I was told and allowing everyone else around me to deal with the details.

The night before the surgery, Dr. Belagura, my micro-neuro surgeon, came to discuss with Roger and I what we could expect the following day.  I remember he started out by saying something about how much easier it would be were he to be operating on an old lady whose brain had been stomped on by a Mack truck than to be operating on me, a vital young woman.  Not exactly a cheering way to begin the conversation.  From there he described the procedure and all the possible results.  On one end, I could die on the surgery table, especially if I seizure on the table (the whole idea of the ten days prior to the surgery was to lessen the likelihood of that happening).  The aneurysm could fully rupture.  I could be paralyzed, blind, unable to speak.  We wouldn't know until he got in there and found out exactly what was going on and what had to be done to stop it.  The surgery would take about four hours.

I remember holding my husband's hand, looking at him.  I don't remember what we said to each other before he left for the night but I do remember what I did for hours after.  Sleep was not on the list.  I finished listening to A TALE OF TWO CITIES.  I reviewed the life I had led up to that point.  I thought of the things I hadn't yet done or accomplished.  I promised myself that if I came through this whole, I would no longer let things happen to me but rather I would make things happen for me.  I would not put off for tomorrow what I could do in the present.  I promised I would not find myself in this same position in the future with regrets about what I hadn't done, hadn't achieved.  At some point, sleep overcame my thinking.

The morning of the surgery, I do not remember feeling any apprehension.  Not before and especially not after taking whatever drug they gave me.  I remember Roger taking my picture.  I remember smiling and laughing as I was rolled down the hallway.  I remember thinking how cold and small the operating room was.  And then I remember nothing.  It's like I was a light and someone had pulled the cord.  I was out and stayed out for the better part of two days.  The surgery took three hours longer than anticipated.  The aneurysm did fully rupture during the operation.  I have my medical records and while difficult to decipher, it is clear there was a period of serious concern.  Roger spent all seven hours in a waiting room by himself, by his choice.  As I think on it, he had the tougher time.  He dealt with all the "what if's".  He told me he started thinking of building ramps to the house at one point.  Friends helped out with our son who was blissfully too young to fully understand all that was going on.  Roger, on the other hand, spent some time thinking about life as a single father.

Roger took a picture of me in the ICU after the surgery.  I am not sure I really remember anything about my time there and I am thankful I had no idea how I looked.  That Mack truck the surgeon talked about the night before the surgery, well, I looked like the Mack truck won.  I do remember regaining conciousness and being told how long I had been out.  I remember being asked who the president was and thinking one answer while giving another.  A wrong answer.  I remember drifting in and out and periodically being asked simple questions I absolutely had the right answers to but was to be unable to give.  It was like my mouth had a mind of its own.  Roger tells me the doctor told him he was very pleased with how things went.  I suspect Roger must have had some doubts given not only the way I looked but the way I sounded.  Time seemed to work its magic though and gradually the real Robin started to make herself known. 

I was moved out of the ICU and about a week later was told I would be going home.  I felt great.  Light no longer bothered me.  I was lucid and not only knew but gave the right answers to such questions as, "Who is the president?  How old are you?  What's your name?" 

At home there was a period of rest and then a period of boredom.  I had follow-up appointments with my neurologist who explained that there would be residuals from the surgery but that they couldn't say for sure what they would be until the scar tissue had fully developed.  From all indications, the worst had been avoided but one couldn't dig around in someone's brain without some expectation of consequences.  My aneurysm was located near the optical nerve on my left side.  It was in an area that dealt with language.  That's what I was told but at that time it meant nothing to me, really.  Everything seemed normal so about six weeks after the event itself, I returned to work.  That was a mistake.

Going into a classroom to teach flanguage arts to thirteen year olds is a challenge under the best of circumstances.  For someone who hasn't fully recovered their energy and who might have a few loose wires in their head, it proved extremely frustrating.  I loved teaching and I loved my students.  I had every reason to believe they loved me.  Well, at least as much as 8th graders can love any teacher.  Things seemed to be going okay other than my being tired but there were a few quirky events that I couldn't explain.  A student would give an answer and I'd repeat what I thought was said only to be greeted with unexplained laughter.  I would be asked to do something, whether by colleagues, students, or Roger, and I wouldn't get the task done.  My forgetfulness frustrated others, Roger most of all.  My last days of teaching were less than auspicous.  I chalked it up to being very, very tired.

Then summer came and while my memory issues bothered Roger, the lack of job responsibilities helped life resemble normalcy.  I took a leave of absence to return to grad school that fall and there my frustrations grew.  At one point, I believed I was going crazy.  I had always been a decent student.  Learning, when I applied myself, was relatively easy.  Not so now.  I could read a page and not remember a thing.  I could read it four or five times and barely remember the most important concepts while not holding on to any of the details.  At one point I was called upon to give an answer and then having given it, I was asked to repeat it for the class.  I couldn't.  I couldn't remember the question much less my answer!  I wasn't tackling the duties of my assistantship well either.  Nothing was going as I had expected and finally I shared this with my neurologist.  Tests were run and it was determined that I had a short term memory deficit and a central auditory processing disorder.  Can you inagine the relief hearing that brought to me?  I wasn't crazy.  Things that once were simple, weren't any more.  But knowing what was wrong, I was able to receive a bit of therapy and make some adjustments.  Clearly, I've been able to do well inspite of these issues.  In fact, I think it made me a much better educator.  Understanding that different brains process differently helped me understand the need to present information using multi-modalities.

So, here I am, 62 years old, retired, enjoying a full and happy life.  The only thing, in addition to the scar, that remains to remind me of the aneurysm, is a tingling sensation I experience on my right side, especially in the extremities.  It's nearly a constant in my life but I'm so used to it that I have to think about it to feel it.  Were I to face a similar situation today, I would have only one regret -- the possible loss of the years ahead and for that I am grateful.

Thursday, July 7, 2011

Route 66, Atlanta, Illinois

Route 66.  I wonder if anyone under the age of 20 even knows this highway much less the cultural impact it had on our country.  I know there are many of us 60 and older who travelled sections of this highway, saw the TV show, and enjoy the song.  And of those, there are some who continue to seek out the stretches of the original highway that still exist and visit various sites along the way.  One stretch we recently travelled is found in Illinois.  The pictures below are of Atlanta, Illinois, a small village off the interstate but once a stopover for those travelling Route 66.

 The library is significant because it is responsible for some of the restoration that has taken place in the city, especially the Palms Grill Cafe.
 We like to stop here to eat, if our time is right.  It opens a bit later than we like for breakfast and closes earlier than we like for dinner but the food, especially the pies, are worth eating off our regular schedule.  You won't find any billboards on the highway advertising its existence.  In fact, you might be tempted to stop at the restaurant you pass as you drive into Atlanta.  Don't.  While I'm sure the food there is good, the Palms has to be better and the ambience is pure Route 66.
 The town is small, as I said above, but they've done a nice job of recreating the painted signs on the side of their buildings.  They are worth seeing.
So, if you are on your way to Chicago and you see the turnoff for Atlanta.  Take a break.  Drive into the town.  Enjoy a step back in history and a great piece of pie!

Saturday, July 2, 2011

Celebrations

Since this is July 2nd, you might think my title refers to the Fourth of July but it does not.  Rather it refers to how my husband and I celebrated our 63rd and 62nd birthdays, respectively, as well as our 39th anniversary.  In short, we didn't.  Now that probably sounds pretty negative to you but on the contrary, for us and to me, it is a strong positive.  Since before we retired and even more so after, we've been leading a very satisfying life.  We travel.  We buy the things we want and need (fortunately, our wants and needs are few and not extravagant).  We enjoy our home and our hometown.  We have good friends and family.  We are healthy and happy and pursuing our individual and shared interests.  It took us years to reach this level.  During those years marking birthdays and anniversaries were excuses to indulge, to take a break and acknowledge each other and our love.  They were also times we worked to find gifts for each other than were meaningful and wanted.  And as I look back on it, they were stressful times.  Did I get the right present for him?  Did we manage to make the occasion special for each other?  Did it convey what we truly felt?  Was he disappointed and more importantly, was I?  We no longer need that annual excuse or experience the stress.  Celebrations for birthdays and anniversaries are no longer set by a date on the calendar nor do they occur once a year.

On our birthdays this year, we went out to eat and listened to great jazz in a cozy restaurant that never disappoints.  It happened that on one of these days, we entertained a nephew who was in town for a conference.  On our anniversary we were at that same cozy restuarant listening to more great music and eating more great food while drinking some very fine wine.  The thing is we do this regularly.  It's not special because we do it rarely; it's special because we do what we love as often as we want and can.  We did not exchange gifts.  When either of us finds something we think the other will really love, we buy it and give it to them, no matter the date on the calendar.  More importantly, we are comfortable buying for ourselves these kinds of things when we find them.  Neither of us are shopaholics.  I am not talking of superfluous spending here.  I'm talking about items, large or small, that fit into our collections or add to our enjoyment of our home or yard.  We have a kind of list of places we want to see before we are no longer able to travel.  These will not be put off to fit a birthday/anniversary schedule but rather, will be fit into our calendar and budget when possible.  The irony is that there is so much we want to do and so little time.  There are conflicting variables and other schedules to consider.  We find ourselves debating which events or places are of the greater importance to us and planning our calendar months in advance.

Now I'm not saying this is how everyone should celebrate the special birthday and anniversary occasions in their lives.  I'm just saying this is how we are doing it now and that it works for us.  As I think about it, I see it as a testimony to how well we get along, how much we share in common, how much we've grown as a couple, and how much we respect and love each other, expressed not only at the prescribed times of the year but rather enjoyed year round.

Friday, July 1, 2011

Some of the Reasons...

The following are some of the reasons I spend hours on my deck...








Morning Thoughts on the Road to Working Out

Yesterday on the road heading to my early morning workout, random thoughts cascaded through my mind, as is often the case when I am driving.  At first I was simply enjoying the wonder of the western morning sky --pure pale blue with a few faint streaks of high wind-wisped clouds reflecting the morning sun.  I wondered if we tend to notice the finer details of our environment the older we get?  Do we spend a large portion of our lives in a hurry to get from one point to another until we reach some stage, as we age, where we slow down hoping to stretch time out, to extend what time we've got left, and in the process notice more, appreciate more?

From that thought, my mind moved on to remembering how much I enjoyed teaching Language Arts and thirteen year olds.  Language Arts.  I even loved the title.  Language ... "the words, their pronunciation, and the methods of combining them used and understood by a community" (Webster).  Art ... "the use of skill and imagination in the production of things of beauty".  I don't know for sure but I like to think it's this definition of "art" the originators of this title had in mind.  Words, sentences, paragraphs, poems, novels, plays.  I loved them all.  A finely turned phrase.  A word that better than any other names or describes a feeling, an experience, an event, a thing.  A phrase or sentence that sums up the exact moment, the exact thought.  A bit of prose or poem that causes me to feel with my mind and my body and my soul.  These are precious treasures to savor.  I also think that thirteen year olds are pretty precious treasures though I'm sure not everyone would agree with me.  Together -- language arts, thirteen year olds, and me -- we explored literature, our way of expressing ourselves, and in the process, learned about ourselves, too.  I loved it all and found myself wondering, would I feel the same if I had continued to teach rather than move into administration.

My last random thought on that fifteen minute drive dealt with the word "strong".  Relying on Webster again, "strong" is defined as "powerful, vigorous, healthy, robust, not mild or weak, not easily broken, firm, solid".  There are strong odors, strong beats in a song, strong flavors, strong commitments, strong ties, strong emotions, strong people.  And as I contemplated all that, I realized all my random thoughts this morning were an outgrowth of the phone conversation I had had with my lifelong friend and former student the night before.  Strong is a word she used as she spoke of herself and her determination to overcome the residual effects of a recent illness.   I realized that all the definitions apply to her, to her spirit.